Bringing the Sarcoma Community Together: The First Sarcoma Day – Family Edition
On Friday, October 2, 2026, the sarcoma community gathered at CHU Sainte-Justine for the first Journée québécoise sur les sarcomes – Édition des familles (Quebec Sarcoma Day – Family Edition), spearheaded by the Dania Kayali Foundation. The event brought together approximately 100 participants, including patients, family members, healthcare professionals, clinicians, researchers, and institutional representatives, with a shared goal: to provide information, support, and meaningful connections for those affected by sarcoma. Throughout the day, presentations and discussions addressed important aspects of the patient journey, including receiving a diagnosis, rehabilitation, supportive care, advances in sarcoma research, and complementary approaches to well-being. The event also provided a welcoming space for participants to share experiences, discover helpful resources, and connect with others who understand the challenges of living with sarcoma. SaRC-Q was proud to participate in this important initiative and present its resources to patients and their families. Through its website and educational initiatives, the Sarcoma Research Consortium of Quebec (SaRC-Q) aims to make reliable information more accessible, help patients better understand their diagnosis and treatment options, and connect them with relevant resources and support. Engaging directly with patients and their loved ones is an important part of our commitment to building a more informed, connected, and patient-centered sarcoma community across Quebec. At SaRC-Q, we believe that advancing sarcoma care requires more than research and collaboration among healthcare professionals. It also means listening to patients, addressing their needs, and ensuring that they and their families have access to the information and support they need throughout their journey. We extend our sincere thanks to the Dania Kayali Foundation for spearheading this initiative, as well as to CHU Sainte-Justine, the speakers, healthcare teams, and everyone who contributed to making this first edition a meaningful day of learning, connection, and solidarity. Together, we continue to strengthen collaboration, empower patients and families, and advance sarcoma research and care across Quebec.








